I read something someone wrote about me the other day–yes, this is a lot like when your mom used to tell you not to eavesdrop because you might not like what you hear about yourself–and while this person had a few bad things to say about me, the one thing they said that I objected to wasn’t negative and IMO, it wasn’t intended to hurt me in any way. I don’t have a problem with someone stating their opinion of me on their blog because hey, freedom of speech as Karen Scott says on her blog, “It’s my blog and I’ll say what I want,” but when I read “she suffers enough every day with MS,” well, let’s just say, I went a tiny bit postal. I even wrote a comment worthy of the worst author in the world behaving badly, but thankfully, I caught myself before I actually hit the post button.
Why, you may ask, is that the one thing in all the bad things this person wrote about me that I objected to? Well, in a nutshell, I don’t ”suffer” from MS. Yes, I have MS, but it does not define who I am, and it does not control my life. Do I wish I didn’t have it? Sure, I also wish I didn’t have Type 1 Diabetes, but I do and I’ve had it since I was sixteen. You learn to live with it, just like I’ve learned to live with MS in the few years I’ve had it. And, you do everything you can not to let it rule who you are as a person.
The thing is…I consider MS more of a blessing than a hindrance. I’m not saying it will always be that way, but for now I’m, well, I can’t say I’m happy that I have it, but I will say, it’s something I can live with. Witness, the post I wrote around Thanksgiving of last year, My Silver Lining…, which listed a few of the reasons I’ve found to be grateful for MS. And in that entry, I didn’t even touch on the biggest reason I consider it to be a blessing; the fact that if it weren’t for MS, I would never have gotten serious about trying to attain my dream of becoming a published author.
I readily admit, I went through several months of depression when I was first diagnosed, and boy, if depression isn’t suffering, I don’t know what it. Luckily for me, when I was at my lowest, I managed to find hope again…in the playful scampering of a cat and the beauty of the world around me. Later that day, I sat myself down at the computer and wrote out what I was feeling and what I had seen. In the end, I had a rather lengthy–and I’ll admit, not very good–poem. I also had a new outlook on not just the MS, but on my life as a whole.
I’m including the last few verses of the poem in this post for you to read–I’ll spare you from the first seven or eight which deal with the symptoms of the flare-up I was going through at the time. Suffice it to say, physically, it was the worst I’ve ever dealt with, but mentally and spiritually, it was the best thing that could have happened to me. I was sitting on the deck on a beautiful New England fall day and…well, I’ll let you read it for yourself:
From A New Resolve:
The cat draws my attention
as he pursues a twirling leaf.
His head is slightly
off-kilter,
his tail takes a
sharp westward turn,
his ears are
no longer symmetrical.
I give up, concede the
power of the monster in my life.
Struggling with despair
as I stare at the cat’s
re-arranged body,
and it occurs to me, he is
a cubist’s crowning achievement;
Black Cat Stalking by Pablo Picasso.
My eyes lift to the trees,
fall colors, not quite in focus,
reds bleed into orange,
yellows seep into green,
daubed on a background of dazzling blue.
as if I am adrift in
an impressionist’s masterpiece,
Autumn in Maine by Claude Monet.
A hint of hope sneaks in,
this baffling disease
may hold me today,
but with that glorious
glimpse of the world
through the eyes
of my favorite artists,
I’ve found a new resolve.
So, to the person who wrote those words about me; while it’s true I have MS, I don’t ”suffer with it every day.” There are countless ways in this world that a person can suffer, and yes, MS is one of them for many, but not for me, not right now. Right now I’m holding hope firmly in my heart and God willing, it’ll stay there for a long time to come.
I wish the same for you.






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May 23, 2008 at 2:43 PM
Steve Hedge
Caitlyn,
I sincerely admire both your courage and positive attitude. I have “suffered” much in my own life, but I have never chosen to drown in self-pity or use it has a weapon against others in a manner not like Dr. House on TV. I always try to think of the next person; I like to think that my example on how I handle things may be an encouragement to others somehow while I’m alive and when I am gone.
As you know from your few brief dealings with me, I’m a very positive person in general (we all have our bad moments) and I typically endeavor to consider how the other person is feeling, hence my apology to you for screwing up your name that time. Your post here does that. You both understood that that comment made about you wasn’t intended to hurt you at all and that you needed to clarify/correct the notion that you are “suffering” so that others better understand your situation.
Your clarification of suffering regarding your illness is most beneficial to those not suffering from it and to those who are. Yes, it’s a terrible illness to have, but you are so right that it does not and should not “define” you. That reminds me of the old days when people use to whisper to others that someone had cancer (like it was catching if you said loudly). I also reminds me of when doctors made their rounds not long ago they often didn’t state your name to the interns; they would say things like, “here is our prostate cancer case”, or “patient #25 is suffering from X disease and isn’t expected to live.” As you so well said, we are more than an illness. I recall my doctor telling my mother when I was very young and sick that she “shouldn’t make any college plans.” I felt so small and insignificant to just be some illness.
The point for you and for me, and others reading this, is that no one should be defined by a disease, character flaw, outstanding trait, or whatever. I wouldn’t want to be judged by my worst moment or flaw and I most especially would not want to be known by an illness (suffering or otherwise).
God Bless you, Caitlyn. I am very grateful that I bumped into you online as I did, and I so appreciate and look up to you for being open about your illness. I simply view you as a brave author and a friend.
May 26, 2008 at 2:45 AM
caitlynhunter
Hey Steve,
Thanks so much for this comment, you really made my day!
I’m sure you know who this was directed to–after all you’ve been dealt a few knocks by the same person–and while I know the best thing to do is ignore the taunts, I found I just couldn’t let that one thing go. Believe me, I debated long and hard before I posted this, but I really hate it when other people use their health as an excuse for bad behavior, so…
One thing occurred to me while I was reading your post; do you think it’s possible that people like you and I who have lived with health problems all their life learn early that the best way to deal with it is with hope and faith? I know I believe that a positive attitude will do more for me than any doctor or medicine ever can. So, maybe we’re the lucky ones after all?
Okay, enough arm chair philosophy. Thanks again for your comment. Having friends like you is a true blessing to me.
God bless,
Caitlyn
May 28, 2008 at 2:27 PM
Steve Hedge
Oh, Caitlyn,
I so agree with you. I never consider myself less than blessed in spite of any hardships I’ve faced. Some people face incredible ones that most others couldn’t handle while others fold under the slightest inconvenience. My hard times have made me who I am and while I am forever a work in progress, I am a much better person because of my struggles. I don’t know who I would be if not for my experiences both positive and negative. I’m one who always tried to make lemonade from the lemon moments in my life. Of course, that doesn’t mean I haven’t had my bad days where I momentarily lost hope or questioned my faith, but I always bounced back and I tended to be stronger for it later. Martin Luther King, Jr. once said, “The ultimate measure of a man is not where he stands in the moments of convenience or comfort, but where he stands at times of challenge and controversy.” I find myself rather thankful for my hardships. What good is faith, character, and determination if none of them are ever tested?
Yes, Caitlyn, we may very well be blessed more than others might think in spite of any setbacks.
June 5, 2008 at 10:29 PM
caitlynhunter
“I never consider myself less than blessed in spite of any hardships I’ve faced.”
Exactly! I suppose some people just don’t get that, let alone understand it.
The MLK quote–one of my very favorites!
Take care and God bless,
Caitlyn